Wednesday, September 16, 2009

Do better.

When you try your best but you don't succeed
When you get what you want but not what you need

When you feel so tired but you can't sleep


I am humbled every day: by patients, by patients' families, by doctors and nurses, by other students. In the face of illness and disease, there is so much information to retain with so little cranial space to contain it. I'm not used to feeling inadequate. But I do, daily. I thought that by the end of medical school, with the extra M.D. and M.P.H. letters behind my name, that I'd be this vessel of knowledge, or maybe a gourd of knowledge at least. (Gourd, I like that word). But perhaps the greatest lesson I'll leave Emory with in a few years is: I won't ever know all the answers. It'd be so much easier if the world was painted in only black & white, but where's the beauty in that? Gray, it's the new black.


And the tears come streaming down your face

When you lose something you can't replace

I admit it. I've become a crier. I spent years of my childhood and adolescence bottling my emotions away and functioning as a tomboy independent hard-ass. All of that has been thrown out the window though. I am one of two regular tear-shedders during small group meetings. I often turn away during patient encounters to hide the welling tears. When it gets really bad, I feign the need to pee and bawl a bit in a bathroom stall. And now, I write if it gets to be too much. But I don't care. Emotions, they're also the new black.
I promise you I will learn from my mistakes

And I will try to fix you
I don't have any semblance of a "God complex." I recognize that I will make mistakes. I already have. I expect my bad days to get worst but also for my good days to get better. But ultimately, I expect this from myself:

DO BETTER.

-Coldplay's "Fix You"


p.s. Listen to the moving version of Coldplay's "Fix You" from the film Young@Heart

p.p.s. Don't be fooled. I may cry but I'm still an independent hard-ass ... only I'm in a dress these days.

Saturday, September 12, 2009

Taste of Chicago

some things never change
partial 829 reunion
mca = hipsters' playground

take your time: olafur eliasson
movies in grant park
my kind of town, chicago is


Wednesday, September 9, 2009

Kids say the darndest things.

Overheard today in the pediatric brain tumor clinic:

"Mom, I'm going to glue your mouth shut. Your eyes too."
- 9 year old boy with a relapsed medulloblastoma that had metastasized all over his brain, who now had right-sided weakness and looked plain tuckered out sitting in his chair, one hand on his IV stand, one hand playing Pac-Man. He was waiting to be admitted for a 5-day inpatient stay of hardcore, heavy-duty chemo.

"Owie. Owie. Owie."
- 12 month old girl with an optic pathway glioma as she saw the needle coming toward her to access the chemo port in her chest. Her dad tried to avert her attention with a Piglet stuffed toy.

"I just want to go to school and be with my friends."
-
11 year old girl with a non-germinoma germ cell tumor who is currently homebound after a recent hospitalization for swine flu and was in the outpatient clinic for cycle 5 of her chemo. We talked about Zac Efron and High School Musical. Yeah, I've got my ears to the streets, folks. I know what's hip.

"Owie. Owie. That's going to hurt."
-
3 year old bilingual girl with a diffuse intrinsic brainstem glioma. We ate Goldfish and played with toys on the floor of her room before the Benadryl knocked her out.

"Please take it out. PLEASE! PLEASE!"
-6 year old boy with a pilocytic astrocytoma that had wiped out the satiety control center in his hypothalamus so that he was now weighing in at well over 100 lbs

Lesson #1: It is never fun to hear a child whimper in pain and fear. Period.
My heart has been simultaneously breaking and singing this week. Oncology is hard. Pediatric oncology is harder.

Lesson #2: Kids are just kids, even if they are sick.
I coo at the babies and bounce them up and down. I talk about boys and clothes with my pre-teen girls. I even chatted about Nascar with one boy who had just recently met his hero, Tony Stewart, over the Labor Day weekend thanks to Make-A-Wish. Seeing as how I know next to nothing about Nascar, it was fun to have this little boy, weakened by chemo, still be able to roll his eyes at me in scorn and disbelief.

Lesson #3: Heroes can come in so many different packages.

Wednesday, September 2, 2009

Rise up this mornin',
Smiled with the risin' sun,
Three little birds
Pitch by my doorstep
Singin' sweet songs
Of melodies pure and true,
Sayin', "This is my message to you-ou-ou:"
Singin': "Don't worry about a thing, worry about a thing, oh!
Every little thing gonna be alright. Don't worry!"

Some mornings, I need a little Bob Marley to get me going. Today was one of those mornings. I was tired and cranky and about to start a 13-hour nursery shift while on my pediatrics rotation. Then I saw Baby D, swaddled in hospital blankets and lying in his neonatal ICU (NICU) crib. I grinned widely to myself.

Mommy D had been my patient at the end of July when I was on the Labor & Delivery OB service. She was 25 years old, just a year younger than me, and she was pregnant with Baby #4. Of her 3 kids, she only had custody of one; she wasn't even sure if she was going to keep Baby D.

Mommy D was addicted to crack cocaine.

It could have been the reason why her water ruptured prematurely at 30.2 weeks. And now Baby D was struggling in utero with almost no amniotic fluid to cushion him. On ultrasound, he wasn't breathing or moving much. We tried to prolong Baby D's delivery as long as possible, to give his body a chance to mature, but he was eventually welcomed to the world, albeit 2 months early.

Fast forward one month. Mommy D has not visited or called about Baby D in the NICU since she was discharged from the hospital. Baby D has periventricular leukomalacia and some calcifications of the brain (maybe due to a maternal TORCH infection). He may also have microcephaly and neuro deficits. Essentially, Mommy D's addiction has caused holes in Baby D's brain. It was like one of those Saturday morning public service announcements - this is your brain on drugs - but in the flesh, in the form of this infant in my arms.

DFACS has been called and Baby D will probably be discharged to foster care once he's stable. As I rocked him for almost an hour, holding him tight to my chest and humming a song, I couldn't keep the tears back. What a sweet, sweet baby. With so many cards stacked against him already.


I'm going to listen to Whitney and my mentor on this one: Crack is whack. It ruins lives. It strips people of their futures. It kills hope.

So often, I'm plagued by the question: Is every little thing gonna be alright? I'd like to think so. But I know the truth is: not always.

So, I'll make sure to hug Baby D extra tight tomorrow, even if it does cause tears to roll down my face.